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Thank you Tosee We are to see surgeon on 10 March to discuss robotic prostratectomy. I feel that it will be the best solution as at his age 57 Gleason 9 the cancer is highly aggressive and therefore needs aggressive treatment. Hot/ cold flushes are constant 24 hours per day with hormone injections and husband is always really tired. Hope you and your husband can enjoy a long life together. It’s funny how such a diagnosis makes you realise that life is so precious and everyone should live it to the full enjoying it daily. thanks.
The cape crusader wrote: I just wanted to get opinions about people’s experiences about their experiences moving from Bicalutamide to injections. It's important to understand the difference between Bicalutamide and hormone injections. The former is an anti-androgen to stop the tumour absorbing testosterone and normally taken for 28 days. During those 28 days a hormone injection will be given which stops the body producing testosterone. Thereafter further hormone injections will be given at intervals (1 month, 3 months or 6 months) to keep the testosterone down.
What treatment have you already had and are you going forward to other treatment such as Radiotherapy or have you just been put on HT only? What was your PSA before all the treatment started? Have you had a MRI and a biopsy if so what is your gleason score and cancer grading? If you are having tablets followed by Hormone injections then I can only presume that you are going on to have another form of treatment. When you first go on HT the PSA can fluctuate slightly. Mine did at the first PSA test on HT after the bicalutamide tablets and the first 3 monthly Hormone injection it went down quite a lot but the second 3 monthly test hardly moved but at the third test went down again. On hormone treatment only over 9 months my PSA didn't ever go
I was also having to get up during the night several times, but not any more. I haven't drunk any alcohol for more than 18 months but started drinking coffee again about six weeks ago. The recommended fluid intake is 1.5 - 2 litres per day and I keep mine at about 2 litres and do not drink anything after 6pm! I know it sounds a bit geeky but I always use the same mug (300ml) and the same glass for water (180ml) so I know exactly how much fluid I have taken in. Two mugs of Redbush tea first thing in the morning, two mugs of coffee at breakfast and one mug of Turmeric tea after lunch. No more than three glasses of water during the day and that's my 2 litres. I will take some extra water after rowing or my aerobics class, but try to keep it to.
Hi Bar. As Des says it depends on many factors, the Gleason score, the patient and of course the oncologist. My Gleason score was 9 and I was told when I started HT that I would be on Prostap for two years. It was at the three month post RT follow-up appointment with the oncologist that he told me it would be three years. I questioned this and he said because of my Gleason score and my family history of PC (my father died of it at the age of 53) he had changed his mind and extended it to three years. Maybe the results of the pre-RT MRI and CT scans also had an influence on that decision. Anyway, the side effects are all under control and I'm just happy to be here and still able to be as active as I am.
I really can't think of the reason for this. My brother-in-law lived with advanced cancer which had spread to his bones and spine for many years and didn't stop driving though obviously he and his wife shared the driving on a long run but he still did a lot of driving as his wife doesn't like driving. I would contact the specialist nurse and ask for the reason for this. There are potential side effects side effects of fatigue and from the Hormone Treatment so saying that he shouldn't drive more than he has to is fine so when he feels OK to drive and is not over tired I would imagine he is as able to drive as any of us on a day to day basis. The nurse didn't say not to drive just not to drive more than he needs to so if he wants to go somewh.
Often there are no symptoms of prostate cancer and some you could associate with growing older and others can be masked by other problems you may have. You have a good treatment hospital there at the JR and I believe they have a Maggies Cancer Centre there where you can always go there and chat with other prostate cancer sufferers. I am not sure if they have a prostate cancer group at the Maggies Centre there but they do at our Maggies centre so do go and find out. It is a great place to go to for advice from their professionals who work there and to talk with other sufferers. Also I would go to the Prostate Cancer UK website and download their pamphlets in the Prostate Cancer Toolkit as this explains things for you at the point of diagnosi.
You keep posting and we'll keep listening John thats what this forum is here for.. You are understandably worried most of the time. The thing is to try and enjoy the moment. Yesterday is gone and tomorrow is not promised so we have to try and enjoy life moment by moment. No one does it all the time. No one can and always at the back of our minds is something about tomorrow next week or whatever but it is so much better if when we are thinking of tomorrow or worrying it is about getting to the airport on time or whether we remembered to do something for that trip or whatever unfortunately for us it is often an upcoming test or scan and it can be almost impossible to put that out of our minds. With your next test only 4 weeks away you are bou.

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