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Hello Cyclops, I've was told I had PC.20 days ago, So we are experiencing similar circumstances. I have had a CT Scan and Bone Scan, now waiting for my biopsy appointment. (apprehensive about that!) Then discussions on completion. Just started on Hormone injections. I would appreciate any advice you may have received on coming to terms. Hope you don.t mind me messaging you.Blueygord.
We have been dairy free for about eight years. I make my own almond milk as we are lucky to live in Spain with our own almond trees. My husband developed prostate cancer two years ago G7, RP in 2018, last year radio therapy and PSA still rising so I am not sure the diary free works for him. But you never know, maybe he would be worse if he was taking dairy? Just a thing to think about. My home made milk is 25% almond but most bought almond milk is only 2% so you wont be getting enough calcium from that alone. If you dont want cows milk try eating plenty of natural almonds and goats cheese as well to get the calcium if you are on hormone therapy to help precent osteoporosis.
The short answer is yes. You don't need to have any symptoms whatsoever but can still have PCa. Of course, you may have some symptoms that you put down to age or you have had "symptom creep" they have crept up so slowly that you don't really notice them. This may be going to the loo slightly more often - the thing that would probably make you notice this is how long a car journey can you go on without needing to stop for the loo. Do you find you have to get up in the night and thinking to yourself oh well, I did have a drink at 8 or 9 and so on but again you don't necessarily have to have any of these symptoms at all.
You can always phone your Dad's keyworker or cancer nurse at the hospital and hopefully get the answers you need, or call the specialist prostate cancer nurses on 0800 07408383 for more general questions. Unfortunately you have to be proactive with the NHS. Maybe try writing the questions down and handing them to the Doc next time you go this can work well as when I have done this and left spaces for the Doc to write in the answers and it has worked quite well. You can also, with the permission of the Doc record the consultation on your mobile so that you can listen when maybe you are not so anxious and get more from what the Doc says and work out what questions you want to ask next time. You may also be able to telephone the consuitant's s.
clarity. not knowing for me is harder. now im just thinking it's down to weeks maybe a few months. a scan would answer our questions. did it work at all? did it work a little? did it just keep it at bay? did it do nothing?. as I said what got me is where she found this PSA number?. it was not on any blood test sheet I seen from last 2 chemos. not on the chemo suite computer. the last number we got was 714 approx., then she (yesterday says on 27th DEC it was 800 odd). I seen the blood test sheet from that date. the psa was not listed. Also she did not know it started at 10,000+ until I told her. is this psa rise a sign of it's stopped working?. Did she just make up a number? She also got it wrong yesterday saying it was over 1000! it started.
Thanks for replying Steve. only ever had one ct/x-ray. approx. end of August. Showed in lymph nodes, spine and hips. Ask today about a scan she said "you don't need one". New treatment is I think another type of steroid or something it's tablet form. How the fuck can he not need another scan?. What we just guess hope tumors have shrunk?. To say im pissed off is an understatement. Last 2 chemo sessions suppose to show PSA levels, they was never requested on the blood test! what a fucking joke. Giving the wrong leaflet today too about this new drug/tablet. The hospital is THE R.U.H BATH. If your having treatment there don't bother! fucking useless. Yes nurses do there best but anyone above that clueless fucking muppets. This is my dads life o.
Hi JA I would ask for another Psa because of the confusion, the easiest way is to ask your GP for one. I think that Psa levels can vary during Chemo so would be good to know what it is now before starting new treatment. I presume that the new treatment is hormone therapy. When was the last Mri done/bone scan? What do these show in terms of spread? regards Steve.
Hi Cyclops. I'm sorry that you have to be here but welcome to the forum. PC is slow growing and you have plenty of time to consider your treatment options. Also, a Gleason score of 3+4 = 7 indicates a less aggressive form so that gives you more time too. It would be helpful to know your TNM grading and whether or not you have had a detailed MRI scan or a bone scan. Please keep in touch.
Do you go to a cancer self help group such as a Maggies Centre together? My wife and I do and although my situation is different from yours it helps to talk to the other cancer sufferers and the professionals at Maggies. We have a Prostate Cancer club - "The Walnut Club" meeting every Wednesday and wives, partners and carers also have an "unofficial meeting amongst themselves with coffee and cake at the same time. We have talks from various medical professionals and also have classes you can go to on how to stay fit after cancer treatment, living with cancer, relaxation, and diet and nutrition etc. This is the thing with this cancer is waiting to get test/scan/PSA results all the time and then just waiting to see what happens when various t.
I was diagnosed at 72 last March with PSA 0f 1400 and Gleason 9+4, Hormone treatment worked well straight away (PSA now 4) and this should keep him stable for a few years without chemotherapy. I had that but it was stopped due to neuropathy after 4 out of six doses. I now have clear lymph nodes and it did not get to bones. I have 'Reset' the clock and could still live well for ten years. The older we are, the slower it progresses. If you look how the disease progresses, then you will anticipate the symptoms. It is better to treat each day as a new venture and use diversion techniques. Hobbies and work will do that. Exercise keeps it at bay too. Walking, swimming and climbing the stairs.
Hi Joe, Thanks for your reply. In Nov 18 he was diagnosed as Gleason 9, found in 6 of 12 samples and 1 pelvic lymph node but with a high PSA of 167. He doesn't have ultrasensitive PSAs so they just say under 0.1. No scans further scans planned but he did have a CT scan after chemo and his oncologist said the lymph node was more or less normal size. Now only Prostap. Might need a TURP for frequent UTIs otherwise 6 monthly phone calls with PSA. I think I felt better when we were being pro active with treatment, now it just feels like we're waiting and I feel like we should being doing more. So hard.

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