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Thank you so much for sharing your story. I do believe that the prostratectomy is the best option. Love the idea of a cure rather than years of managing, radiotherapy and hormone injections. Urine incontinence worries my husband most but you have to take risks to have the best life. Hope you and your partner continue to enjoy life to the full. Thanks.
Its fairly normal to have these kind of problems post RT but after 5 months they should be getting better not worse. Couple of questions though, did you have any long standing bowel/urinary issues before the RT and is RT the only treatment that u have had for the PC. As Freefaller says the specialists have seen these reactions before so should be able to come up with some treatment/medication to help. regards Steve.
Without knowing what your specific problems are it is hard to comment but all sorts of problems appear after radiotherapy. Is this your rad. onc or urologist saying this? I am surprised that they haven't come across all the varying side effects from radiotherapy. Of course there can also be problems appearing that may have nothing to do with the radiotherapy. Both bowel and bladder problems appear after radiotherapy and sometimes months after. There is medication available and it may be a good idea if you e mail the MacMillan specialist nurses on this site with your problem and get an answer from them as I found them really helpful. Or you could contact the Prostate Cancer specialist nurses on 0800 074 8383. They are open Mon - Fri 9am to 6.
Hello This is my first post on this forum. I have been diagnosed with Advanced Prostate cancer and started hormone treatment in November 2019. I am due to start chemotherapy within the next two weeks. My PSA result from my GP in Nov 19 was 102. A second result of 81 was recorded prior to hormone treatment. A third test result two days ago was 13. Has anyone experience of PSA dropping like this over a short period? I am obviously extremely pleased as the hormone treatment is working but maybe a little confused at the speed. Has anyone had similar experiences or is this fairly standard. Thanks for your time.
I was diagnosed at 72 last March with PSA 0f 1400 and Gleason 9+4, Hormone treatment worked well straight away (PSA now 4) and this should keep him stable for a few years without chemotherapy. I had that but it was stopped due to neuropathy after 4 out of six doses. I now have clear lymph nodes and it did not get to bones. I have 'Reset' the clock and could still live well for ten years. The older we are, the slower it progresses. If you look how the disease progresses, then you will anticipate the symptoms. It is better to treat each day as a new venture and use diversion techniques. Hobbies and work will do that. Exercise keeps it at bay too. Walking, swimming and climbing the stairs.
hi bookworm i have advanced metastatic P.C so classed as incurable ( gleason 9 5+4 ) been on hormone treatment now for a year , had chemo which ended in may last yr so been through most of what ur dad might have to face soon ( hopefully not ) the doctors hinting that things dont look gd !
Hi bookworm, I have advanced prostrate cancer and a daughter with significant mental health issues. I myself struggled with work related depression. What I learnt is it’s essential to talk, whilst I don’t want my daughter to dwell on my diagnosis or ignore it I’d also be concerned if she didn’t express her feelings at all. My second daughter has been superb, mixing being open and supporting whilst acknowledging it’s a shit situation to be in. Locally advanced can still be cured. Mine has spread to ribs, but this can still be managed, we can only take things day by day, it’s too overwhelming otherwise. Acknowledge your feelings, I’m sure it will also help your dad to acknowledge his, don’t dwell on the cancer, try and enjoy what you do have
So my dad (66) has recently been diagnosed with locally advanced prostate cancer, he is waiting for the bone scans but the doctors have hinted it doesn’t look good. he got diagnosed in November and I am 23 years old. I have had a lot of mental health problems over the last two years and I have been in recovery (off medication and feeling well) since August. When dad got diagnosed I was the first one to know. He didn’t feel too upset about it, he believes that this is what happens sometimes. Anyway he hates anyone feeling sad and upset, I can understand it would be pretty depressing. So we laugh about it and joke and make funny scenarios around his diagnosis as our way of letting out tension. This is fine! But when I’m alone all I want to do.

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